An Unexpected Appointment

by Christen on July 17, 2010 · 15 comments

in Home

Last week, I went in to my OB/GYN complaining of pain and a lump I thought was associated with breastfeeding .  I’ve had them come and go before and just figured they could tell me the best way to avoid/get rid of them altogether. The nurse set me up to get an ultrasound – just to be on the safe side.

Last Wednesday, I went in for my ultrasound – an appointment I nearly blew off since I was beginning to feel better. I was certain the pain was from having to pump instead of nurse, as I’ve had to go back to work full time.

When I arrived, the nurses decided I needed a mammogram too since I am over 30. I thought nothing of it, but after a third round of pictures, I began to wonder.

“Oh, we just see some scattered microcalcifications and want to make sure we are extra cautious”, the nurse said. I begin to sweat a little, watching every emotion on her face in order to interpret what she might see. In her face I saw disappointment.

“Just sit outside and wait for your ultrasound, ma’am”, she says with a forced smile. I sheepisihly waited while they interpreted results of my mammogram. 

A few minutes later, another lady walks me back in a dark room to do my ultrasound. The first go around, she didn’t find anything. Clean slate.  A few minutes later, however, the radiologist asked that I have another ultrasound, in a different location of my breast. I watched as she moved the wand and then I saw it clear as day. Amongst a backdrop of white tissue, there was a round, black spot. I stopped breathing.

The nurse fiddled around in that area, taking lots of pictures while I didn’t speak. I was afraid to ask any questions. She didn’t speak either. When she was finished, she asked me to wait for the radiologist to come in and give me a consultation.

I waited in the dark room for about 5 minutes which seemed like hours. Dr. Silver came in and handed me a sheet of paper with a check by “suspicious lump”, indicating that I need a follow up biopsy.

Every negative emotion ran through my body: fear, skepticism, anger, sadness. I just want to me a mom to my kids; I have too much to lose! Between this, having two kids, nursing, and a stressful full-time job, I was certain I’d lose my mind.

I went in for my first consultation Friday and found that doctor to be a total goon, so I’m getting a second opinion Monday. He did tell me that I would likely have to stop nursing, as the biopsy incision will cause a “milk fistula” (in other words, milk pouring out from the incision site) which will inhibit healing. Being incredibly stubborn, I knew there would be a way to continue nursing after having a breast biopsy.  Either that, or maybe I should delay the biopsy? Would that be incredibly stupid? Probably.

In all my research, I’ve decided that I will continue to nurse Bennett, but wean him from the affected side – just until things heal. I can then begin the process of “relactation”. (Yes, this is possible and moms can even nurse their adopted children with a lot of patience and persistence.) I have meanwhile called every lactation specialist within a 100 mile radius, plus another located in Canada. ;) Looks like I will be a “case study” in this situation, as there apparently aren’t many moms that have biopsies while nursing.

My gut tells me that everything will be fine, that I will have the biopsy and results will come back as negative. But I please ask for your prayers. I am scared and completely overwhelmed between working and trying to be a good mommy and wife. It’s just too much to handle sometimes. Thanks you for your support and concern and I will certainly keep everyone updated. If anyone has experienced anything like this, I’d love to hear from you!!

{ 15 comments… read them below or add one }

Sally July 18, 2010 at 6:13 pm

I’m so sorry for the added stress this causes in your life. I pray that everything will be just fine, as you’re feeling. I wish I could give you those words from a place of experience, which is always more powerful, but your experience will certainly help other people. I”m sure you aren’t the only nursing mama who has had this issue, just maybe the only one who is talking about it? And talking about it is sure to help others connect to you and help them as well. Best of luck to you, and healing thoughts are sent your way.

Stephanie Cornais July 19, 2010 at 10:43 pm

You will be in my prayers for sure. I have a couple of friends who nurse their babies off only one boob for different reasons. You will be lopsided, but its totally and completely possible.

Kara July 20, 2010 at 8:06 pm

Oh, Christen …. praying for you!

Thanks for taking the time to write this post and update us. You’re in my thoughts, for sure!

Mandi @ Organizing Your Way July 20, 2010 at 8:37 pm

Praying, Christen — I can hear and feel your stress and fear, so I’m praying not only for complete health but also for peace as you walk this road.

:hugs:

Aimee @ Simple Bites July 20, 2010 at 8:39 pm

Christen- I imagine you are still in shock, a bit. What an ordeal….

Hang in there, girl; we’ll be praying for you on this end and trust that everything will be OK.

Keep us updated, and good luck with the breastfeeding. Kudos to you for sticking with it when most moms would give up.

Hugs!

Tsh July 20, 2010 at 9:44 pm

Oh my, Christen! I will definitely be praying for you — let us know how it goes. And I echo Mandi, that I’ll pray for peace as well as healing.

((hugs))

Alaina @ {my heart felt} Life July 20, 2010 at 10:07 pm

Christen – I can never say the right words so I will just lift you up right now in prayer. I pray that everything turns out to just be suspicious and nothing more. That your worry and fear are lifted and you feel nothing but peace.

I want to share with you about my 3rd son. I know right now a huge concern for you is the nursing. My son nursed from ONLY my left side for 15 of the 18 months I nursed him. The first two months I fought with him to nurse on both sides before I finally just gave in to him. It was partially because of the tumor on the side of his face that later appeared and we realized that’s why he didn’t nurse on my right side. (Baby is a-okay if you are wondering) So it is totally possible to stop nursing on the infected side and after 4 months of not nursing on the right side I was easily able to use a pump to relactate and I pumped that side at every other nursing to keep it going.

HUGS and Prayers to you!

Christen July 20, 2010 at 10:10 pm

Thank you, everyone, for your thoughts, prayers and support! I was thankfully able to find a surgeon to do a minimally invasive biopsy which should not affect breastfeeding to any great extent. I can already see how God has thoughtfully orchestrated every person and situation to provide some peace during this time. I’ll definitely keep you posted…should know more early next week!

Christen July 20, 2010 at 10:18 pm

Wow, you say you don’t have the right words to say, but you said exactly what I needed to hear. You have truly encouraged me – thank you! And I’m so glad your son is OK. :)

Cindy July 20, 2010 at 10:37 pm

I’m so sorry to hear you’re dealing with this. In the last 12 months, I have had a mammogram, two ultrasounds, a needle aspiration and finally a biopsy and I’m only 32!…and the cyst was benign!!! All of this to say I can somewhat relate (minus the breastfeeding part!) and know specifically how to pray for you. Hang in there! You are amazing to even want to try to keep breastfeeding! Go girl! :) Praying for you to be able to rest peacefully in the waiting period, for strength and calm, and for a benign cyst.

LV July 21, 2010 at 5:40 am

You are very courageous to want to go and breastfeed! Please don’t let the fear eat you up! May your heart grow steadfast in hope. May you be in God’s peace always. May you find the stillness in His arms and even if there are no answers sometimes, may you be comforted.

I had to stop bf at 10mnths due to emergency amalgam removal, nobody could tell me for sure how toxic my body would become or what effect it would have on my milk – I did not want to risk the health of my son (there are conflicting opinions, but basically milk becomes very toxic). I cried for a month, developed a plan to wean and then instead of it, went cold turkey on the day of the removal. My son did not ask for milk again. And all this agony of thinking I am failing him. What I am trying to say is that sometimes we let the fear grow, the agony prolong, when the moment is real and here, and the beauty of it is once off, not to be repeated and it is your role as the mother and home keeper to live fully for your sake & your family’s.

tanya@motherwearblog July 21, 2010 at 5:40 pm

Hi Christen,

I’m Tanya, and I write the Motherwear Breastfeeding Blog. I’m also a lactation consultant and work for a professor at the University of Massachusetts who does breast cancer research using breastmilk.

I’m sorry to hear about your ultrasound results and the need to have a biopsy. Through this research we’ve been in touch with a lot of moms in this situation.

Right now we’re looking for nursing moms who are either expecting to have a biopsy, or who have already had one in the past to donate a milk sample for this research.

The hope is that one day there will be a way for moms to send in a milk sample and get an assessment of their breast cancer risk without having to have a biopsy. Other outcomes of the research are new preventative and theraputic strategies. Participants fill out a quesitionnaire, Fed Ex a milk sample (at the study’s expense) and receive $50 in thanks.

More information is at http://www.breastmilkresearch.org, and I’d love to chat with you about the study (as well as your doctor’s suggestion that you’d have to wean in order to prevent a milk fistula – I think that this has been quite rare among the participants in the study). Feel free to email me at info at breastmilkresearch.org

Thanks, and love your site!

- Tanya

Christen July 21, 2010 at 8:33 pm

@ LV – What an encouragement! You are so right….sometimes, we just need to let go and trust God’s timing, as it is perfect in every way. I have already been amazed at how He’s worked in this situation, why should I doubt Him at all? Thank you again for your encouraging words and prayers.

Christen July 21, 2010 at 8:37 pm

Tanya –

Wow, what an interesting study. I would definitely like to get on board and will email you this evening. Thank you for your comments, encouragement, and a chance to potentially help others. Would you mind if I shared your study with my La Leche League contact? She would find this quite facinating.

Thanks again,
Christen

Megan March 21, 2011 at 10:04 am

I know this was posted a while ago, but I thought I’d share my experience. I went through EXACTLY the same thing, almost to the letter. My left breast was swollen, misshapen, painful and my daughter wouldn’t nurse on that side. I didn’t have a fever and I felt fine otherwise. I had ultrasounds, mammograms and was eventually told that I needed surgery to remove the lump, even though no one could tell me what it was. In my case it turned out to be a staph infection in my breast. I was on antibiotics for about 3 weeks and every week I went to a surgeon who used a needle to drain the pus from my breast. It sounds a lot more painful than it really was and the draining helped the antibiotics circulate to the infected areas. Everything cleared up pretty quickly and my daughter – who will be 1 this week – nurses happily on both sides.

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